Tag Archives: Charcot-Marie-Tooth

It’s Only a Flesh Wound

28 Jun

I don’t know what it is with men and medicine.

The Squire suffers from Charcot-Marie-Tooth syndrome (named for the two French doctors and one Englishman who zeroed in on it), which is an hereditary nerve condition. The nerves die and the muscles atrophy, pulling against the bones. If it “kicks in” when you are a child, the bones twist to accommodate the muscles, but if you get it as an adult, the patient frequently opts to have the foot amputated, as the pain is simply excruciating. As it is, The Squire often has nights when he is very uncomfortable.

His nightly routine is two Tylenol PM, which don’t always control the pain. When his feet hurt, the only way to soothe the pain is to keep the foot moving. Jiggle, jiggle, jiggle. Naturally, this doesn’t do me a bit of good, but when I suggest he go sleep  in the guest room, he assures me he is fine.

That’s nice, dear. Now, go away. You bother me!

My dad used to lean against the door frame and moan, and I’m not sure which is worse. If my mum didn’t stab Daddy with a paring knife, I guess I can avoid smothering The Squire with a pillow.

I’ve recommended he ask the doctor for something stronger, if only to take on a PRN basis. “That isn’t necessary.”

When I had my neck surgery in September, I was given a months-worth of surgical strength pain medicine, to take every four to six hours, so I have loads of the stuff left over. Blithely disregarding Federal laws, I strongly suggested he take one of my little white pills. Just to shut me up, y’know.  So finally, about a month ago, he did agree to take one of them, and announced he’d had the best night’s sleep he’d had in ages. (That made two of us.) A few days later he again requested a pain pill. Maybe we’re making some progress; I even put the bottle with his other meds, but No, we’re back to the Tylenol.

Last night, he said he got up at 1 AM, took two more Tylenol, and slept in the other room. I never noticed he was missing.

But I did sleep well.